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OMG! What Happened to My Daughter?

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My daughter has labial adhesion.

woman with baby girl

Guest blogger Harper: It is only after a lot of tears, several glasses of wine and calls to my pediatrician, mother, sisters and closest girlfriends that I am calm enough to write this post. Thankfully, what I discovered about my infant daughter isn't a big deal, but for ten loooong minutes, I sure thought it was. Had I known something like this existed, I could have been saved the torture of thinking something was seriously wrong with my child. According to her pediatrician, it's called "labial adhesion" -- yes, you read it correctly -- and it means that my child's vagina has sealed itself shut.

I discovered it yesterday, while changing an especially messy diaper. At first I thought I was imagining things, but upon closer inspection I saw a faint white seam where the opening of her vagina should be. My first thought was that it was a birth defect I had somehow overlooked, which of course was followed by more thoughts, all horrifying, about what this could mean for my child's reproductive future. I frantically called her pediatrician, and after a brief hold (which felt like an hour), he picked up and informed me that the condition isn't uncommon in female babies, and that unless she's having trouble urinating, not to worry about it. "The matter should resolve itself by the time she's 6 years old," he said. "Trust me, you can Google it." I breathed a huge sigh of relief, thanked him and hung up. And then I got to Googling.

While I did find a lot of information on labial adhesion, much of it was contradictory, so I asked an editor at momlogic to suggest an expert to address my concerns. Dr. Cara Natterson, pediatrician and author of "Your Newborn Head-to-Toe: Everything You Want to Know about Your Baby's Health Through the First Year" did just that. Not only did she assuage my fears, she gave me a thorough lesson on this bizarre (and surprisingly common) condition that has affected my 10-month-old daughter. Here is what I learned:

Labial adhesion happens most often in girls 3 months to 6 years of age (it can also be present at birth). The delicate inner lips of the vagina are sensitive to the hormone estrogen, which decreases in the child's system soon after birth. With the absence of this hormone, the labia become "sticky," and in 1/3 of female babies, can fuse (partially or totally) together. This is usually caused by irritation or inflammation of the labia -- bubble baths, perfumed soap, urine and feces are some of the possible culprits.

The condition isn't treated unless the flow of urine is blocked, which can cause discomfort or frequent urinary tract infections. I asked Dr. Natterson how one could tell if a child had a urinary infection (it's not like your baby can tell you), and she said that mothers would know the difference between a "screaming in pain" cry and an "I don't like my diaper changed" cry. Good point.

If treatment is necessary, an estrogen cream called Premarin may be prescribed, and when applied to the area, will cause the thin layer of fused cells to separate. This isn't a permanent solution, however, as re-fusing of the area can occur once treatment is stopped. Be aware that Premarin has been known to cause labial darkening, breast development and pubic hair in infants (??!!), but once the cream is no longer used, those things will eventually subside. (Note: In doing online research, I discovered that many parents had opted out of using the cream for these reasons, as well as a warning on its label indicating a cancer risk. The risk is small, but if it concerns you, ask your doctor for possible alternate treatments.)

Labial adhesion usually doesn't require medical attention. According to Dr. Natterson, most cases will resolve themselves at the onset of puberty. If the thought of your child having a vaginal adhesion for this long bothers you (as it did me), consider that the beginning stages of puberty have moved up, so the labia should begin to open by age 6. Physical activity by the child also contributes to earlier labial separation.

In my opinion, pediatricians should let parents know about labial adhesion during their daughters' first checkup. Even though Dr. Natterson feels it's not a preventable condition, had I known about its possibility, I wouldn't have bathed my daughter with scented baby wash, and I would have looked more closely during diaper changes. At the very least, I could have been spared ten agonizing minutes of wondering what the heck was going on with my baby's vagina. All is well now, though, and I've decided that if a fused labia doesn't bother my daughter, it's not going to bother me.


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17 comments so far | Post a comment now
briyellis March 30, 2010, 8:30 AM

My daughter, who is 18mos, has had a labial adhesion since she was around 3 or 4 mos old. Her pediatrician noticed it at her well-baby appoinment. My daughter’s is only 25%, though. So I can only imagine the horror of a 100% (or nearly 100%) adhesion.

I ended up getting a squirt bottle (like the ones they give you for postpartum hygiene) so that I could make sure she was completely clean after a very messy diaper. I don’t want to her get a UTI or worse.

Angela March 30, 2010, 8:50 AM

New moms are already anxious and on information overload so I’m actually glad that my pediatrician didn’t try to list every potential problem or condition (even the common ones) that my baby could develop. I think a more practical solution would be pointing parents toward a good baby book that covers this and other common concerns so that they can look up what they need as they go.

Jennie March 30, 2010, 9:21 AM

Don’t worry to much, this happened to a friend of mine’s daughter. She called me in a panic as I also have a daughter. I never had this issue with mine though. Her daughter is getting ready to turn 4 and it rarely happens.

Julie Malley,DC March 30, 2010, 11:43 AM

Great info in this blog! The reason why the onset of puberty has been adjusted down to age six has to do with the amount of bad estrogen compounds found in our environment. These are contributing to our girls entering puberty at a younger age.

Black Iris March 30, 2010, 12:06 PM

Your kid can have a UTI without you knowing it. If her growth slows, get it checked. It is hard to check before kids are old enough to pee in a cup, though.

Marcy March 30, 2010, 1:58 PM

I’d never heard of this. fascinating.

I would like to say a word about UTis though. My son had one at 2 months of age. I didn’t notice any pain or discomfort on his part when peeing, but he did have a fever and his urine smelled. Like it REALLY smelled very strongly. We took him to the ER and they were able to catheter him and get a diagnosis of a UTI. So, just saying, you may not notice or even associate your child being in pain while peeing (and they may not feel it) but a fever is a pretty good indicator of an infection, as can be the foul-smelling urine.

Nicole March 30, 2010, 2:07 PM

Thanks for this article! My daughter was “diagnosed” with a labial adhesion at her first well-baby checkup as an infant. At the time I was all freaked out and wondered if she would be okay…my husband on the other hand loved the idea, lol. I had never heard of this before so it’s so nice to hear I’m not the only one out there! She’s 2 1/2 now and it’s still there, but like you, our doc said not to worry because there’s still plenty of time and it will most likely work itself out.

Anonymous March 30, 2010, 2:19 PM

Premarin is literally made out of pregnant mares urine..if u r going that route i would check out another estrogen cream

Carolyn March 30, 2010, 2:20 PM

I’ve raised three daughters and have never even heard of this condition. I wonder why pediatricians don’t talk about it or why it’s not mentioned in more parenting books.

Trish Has 3 Girls March 30, 2010, 6:27 PM

My 6 and 5 year old daughters both had labial adhesion as infants. My oldest had it the worst. Meaning it lasted longer and there was more than one occasion when I had to pry her labia apart. It is very scary and so sad to see your babe in pain. But, it isn’t a big deal and she will be completely fine, healthy and normal.

tennmom March 31, 2010, 9:26 AM

My older daughter had the same problem from around 3 months old until she was 6 or so. At first, her doctor prescribed an estrogen cream. She would “open” with treatment, close again.
She did have problems with UTI’s. We were sent to a ped. urolgist. The nurses refused to cath. her b/c she was so closed. Not long after, the UR examined her, grabbed a tube of KY & basically pulled her labia apart without telling me he was going to. I could have killed that man.
One of his nurses pulled me aside, gave me great advise about using KY & a cotton swab very gently, every morning and night. It worked.

Anonymous March 31, 2010, 7:31 PM

I was born with this affliction and can still remember my pediatrician separating the lips of my vagina with a cotton swab and screaming my head off. I had to be older than 4 but I’m pretty sure I was younger than 6. I did outgrow it, but I have to say, the negative side of this has stuck with me for 50 years.

Dori April 2, 2010, 9:02 AM

It’s nothing to worry about… I had labial adhesion when I was growing up, and it resolved itself when I was 10 or 11. My mother claimed it was due to the fact I was conceived on birth control, but to what end I’m not sure. The biggest thing to remember is that it doesn’t present urination or developmental problems, but when your daughter is old enough to physically, (and mentally,) withstand a pap smear exam, have the doctor check out her insides and make sure they’ve developed properly, (just to be safe.) I luckily had no problems and it seems as though it’s not a serious deformity.

Jane "10 x 10 gazebo" Lady April 5, 2010, 12:21 AM

Its very informating blog.

www.momlogic.com May 22, 2011, 9:10 AM

Labial_adhesion.. Outstanding :)

www.momlogic.com June 3, 2011, 4:41 AM

Labial_adhesion.. Awful :)

www.momlogic.com June 5, 2011, 4:57 AM

Labial_adhesion.. Great! :)


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